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It is Neurofibromatosis. My son Sam has NF1.

Neurofibromas, the most common tumors in NF, are benign growths which typically develop on or just underneath the surface of the skin but may also occur in deeper areas of the body. Neurofibromas, which are composed of tissue from the nervous system (neuro) and fibrous tissue (fibroma), usually develop around puberty although they may appear at any age. The tumors are not contagious. Nodule-like surface tumors are known as dermal neurofibromas. Plexiform neurofibromas grow diffusely under the skin surface or in deeper areas of the body.

Sam was diagnosed with NF1 at the age of 9 months. Next week he turns 5 years old.

This blog will be an effort to help us journal his life.